All Posts by Lynn Ehrne

It’s PCD (Primary Ciliary Dyskinesia) Week at ATS! 

UPDATE: Link to the recorded webinar: Fact or Fiction – Common Myths Encountered in Genetic Testing for Primary Ciliary Dyskinesia ——————————————————————————————————————————————————————— The American Thoracic Society (ATS) and the PCD Foundation are pleased to offer the following PCD patient education and awareness activities during PCD Week at ATS, July 15-18, 2018: July

Read More

Hot off the Presses , the ATS Clinical Practice Guideline for the Diagnosis of PCD is now (freely) available at the American Thoracic Society website!

Using rigorous evidence-based analysis, this document provides an overview of available information related to best practices for diagnosing PCD and addresses some of the challenges and misinformation currently confronting clinicians and patients in their PCD diagnostic journey. Enjoy! Please note, this is located in the ‘pediatric’ section of the ATS

Read More

NEWSLETTER SIGN-UP

Join our weekly newsletter for PCD updates.