by Lynn Ehrne | Dec 20, 2023 | EDUCATION
PCD Foundation hosted a live webinar entitled:A New Clinical Trials for DNAI1 PCD. Learn about an upcoming clinical trial of an mRNA therapy developed by ReCode Therapeutics that will target PCD-causing genetic defects in the DNAI1 gene. Presented by Ramona Doyle,...
by Lynn Ehrne | Dec 7, 2023 | EDUCATION, RESEARCH
PCD Foundation hosted a live webinar entitled:An Introduction to Clinical Trials. Presented by Ramona Doyle, MD.Clinical Professor of Medicine, UCSFConsultant, ReCode Therapeutics Individuals with PCD, regardless of whether their diagnosis has been genetically...
by Lynn Ehrne | Mar 10, 2022 | Diagnosis, EDUCATION, RESEARCH
The PCD Foundation hosted a live webinar entitled:Clearing the Way: an update on PCD research,presented by Michele Manion, PCD Foundation Executive Director.PCD research is moving full-speed ahead! Learn more about what we have learned so far, what still needs to...
by Lynn Ehrne | Mar 2, 2022 | Diagnosis, EDUCATION, RESEARCH
PCD Foundation hosted a live webinar entitled:How common are PCD genetic variants in the general population?,presented by William Hannah, MD and Benjamin Gaston, MD. The presentation will focus on the paper, ‘The global prevalence and ethnic heterogeneity of...
by Lynn Ehrne | Mar 2, 2022 | Advocacy, EDUCATION, FAMILY
PCD Foundation is hosted a live webinar entitled ‘Mental Health Issues in Children and Adolescents with PCD’ presented by Tamara Vance, MSW LICSW. The presentation provided information on common mental health issues related to PCD among patients as well...