The more we find out, the more we can share, helping people learn and giving current and future PCD patients—like Max—the opportunity for a better life."Cindy
Announcement
Thank you for joining us at the 2026 Global PCD Conference!
We were thrilled to welcome more than 380 PCD patients, families, physicians, researchers, and more to our 2026 Global PCD Conference in Montreal, Canada. Unable to attend? Save the date for our Post-Conference Recap Webinar: September 15, 2026 at 8:00 AM Eastern Time.
LearnIgniting the
Future Together.
We can all be sparks for progress
My hope for the girls and all those living with PCD is to breathe deeply, be resilient and live a life without limits.”Adriana
I am so much more than just a person with PCD. I am determined to make a difference in the lives of others.”Amy
News & Updates
Join us for a webinar on PCD Basics!
Understanding PCD is essential to navigating a diagnosis. Whether you
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An Evening to Ignite Hope
Save the Date! PCD Foundation: An Evening to Ignite HopeFriday, October
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Webinar: PCD On The Move 2025 Conference Highlights
Sponsored by Insmed and hosted in partnership with Running On
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Global PCD Conference
Registration Now Open! August 19 – 22, 2026Le Centre Sheraton Montreal
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October is PCD Awareness Month
Each year in October we come together for PCD Awareness
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mRNA Potential for PCD
There are several opportunities coming up in the very near
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Challenging Lung Infections in PCD
Why do challenging lung infections occur in PCD? Primary Ciliary Dyskinesia
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Patient Experience Week- ReCode Therapeutics
National Patient Experience Week April 29, 2024- May 3rd, 2024. We
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Fueling Research In PCD Webinar- 4th in a series from...
Learn more about the importance of research, including the crucial
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I Have all the Symptoms–It Must Be PCD
By Michele Manion, Oct 23, 2017 PCD diagnosis continues to
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