The more we find out, the more we can share, helping people learn and giving current and future PCD patients—like Max—the opportunity for a better life."Cindy
Announcement
Join us to Ignite Hope!
We’re bringing our community together on Friday, October 16 for an inspiring evening of connection, celebration, and hope — and we’d love for you to be part of it. Join us at the Lincoln Park Zoo in Chicago, Illinois, as we come together to Ignite Hope and help create a brighter future for the PCD community.
Learn MoreIgniting the
Future Together.
We can all be sparks for progress
My hope for the girls and all those living with PCD is to breathe deeply, be resilient and live a life without limits.”Adriana
I am so much more than just a person with PCD. I am determined to make a difference in the lives of others.”Amy
News & Updates
Global PCD Conference Recap Webinar
Were you unable to attend the first Global PCD Conference
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Join us for a webinar on PCD Basics!
Understanding PCD is essential to navigating a diagnosis. Whether you
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An Evening to Ignite Hope
Join us in Chicago for our signature fundraising event, An
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Webinar: PCD On The Move 2025 Conference Highlights
Sponsored by Insmed and hosted in partnership with Running On
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Global PCD Conference
Registration Now Open! August 19 – 22, 2026Le Centre Sheraton Montreal
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October is PCD Awareness Month
Each year in October we come together for PCD Awareness
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mRNA Potential for PCD
There are several opportunities coming up in the very near
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Challenging Lung Infections in PCD
Why do challenging lung infections occur in PCD? Primary Ciliary Dyskinesia
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Patient Experience Week- ReCode Therapeutics
National Patient Experience Week April 29, 2024- May 3rd, 2024. We
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Fueling Research In PCD Webinar- 4th in a series from...
Learn more about the importance of research, including the crucial
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I Have all the Symptoms–It Must Be PCD
By Michele Manion, Oct 23, 2017 PCD diagnosis continues to
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