National Patient Experience Week April 29, 2024- May 3rd, 2024.

We are proud to partner with ReCode Therapeutics on a video project, shedding light on the patient experience through the patient lens. 

PART 1: Shedding light on PCD- Introduction

Patient Experience Week honors the profound daily impact healthcare professionals have on the patient experience. As this year’s commemoration begins, we’re proud to introduce you to Bill Anton, Chairman of the PCD Foundation and a patient advocate living with Primary Ciliary Dyskinesia (PCD). Earlier this month, we spent a couple days with Billy learning about the day-to-day management of his PCD, his current symptoms and treatments, and his future outlook.

At ReCode, we are committed to transforming the treatment landscape for genetic diseases like PCD. Through our research, including our PCD-focused mRNA-based therapy, RCT1100, designed to restore ciliary function by targeting the disease’s root cause.


PART 2: Compliance and Illness

Everyday, Bill Anton, PCD Patient and Chairman of the PCD Foundation, asks himself, “What am I doing today to give myself the best chance at tomorrow?”

As Patient Experience Week continues, and every week at ReCode, we’re focused on the unique challenges Primary Ciliary Dyskinesia (PCD) presents, including chronic respiratory infections and the constant need for vigilance in health management. Despite these challenges, patients like Billy and their families face each day with hope and determination.

We share in their optimism. Stay tuned for the full video.


PART 3: Treatments

This Patient Experience Week, let’s reflect on the critical need for tailored treatments in healthcare. In today’s video excerpt, Bill Anton, PCD Patient and Chairman of the PCD Foundation, discusses the lack of specific therapies targeting Primary Ciliary Dyskinesia (PCD).
At ReCode Therapeutics, we aim to change this deficiency with RCT1100, our pioneering mRNA-based therapy targeting the genetic roots of PCD—specifically mutations in the DNAI1 gene.

Part 4: Hope for the future

As Patient Experience Week draws to a close, we extend our deepest gratitude to the PCD Foundation and Bill Anton for their partnership and collaboration. Working closely with those who live with PCD inspires and propels our work forward.

Researchers and patients should not be disconnected. Our collaboration can bring about a future that, in Billy’s words, “would not be believable that it would happen this soon.” Ongoing advocacy from patient communities helps advance research, and this symbiosis makes for a promising future guided by collaborative and rigorous science.

The full video is now available on our YouTube: