20th Anniversary

20 Years of Progress, Together

This year marks the 20th anniversary of the PCD Foundation (PCDF)! It is with great joy and immense gratitude that we celebrate two decades of work to expand programs and support initiatives focused on finding a cure for PCD. We are grateful for all of you who have helped us along the way.

Partners in Progress: 20th Anniversary Campaign

With the support of philanthropy and many incredible people, PCDF is celebrating twenty years of progress toward a cure. 

We will be embarking on a special anniversary campaign to raise $650,000 in support of our ambitious plans for the future. All of our collective efforts throughout the year will help us reach this goal and we hope you will join us as a Partner in Progress!

Your partnership during this special year will allow PCD Foundation to continue to be a leader in driving PCD research and care forward. Give now to support Partners in Progress: PCDF 20th Anniversary Campaign.

Did You Know?

Over the last two decades we have made significant advances in discovery and care, and we are so proud of how far we’ve come. Read on for some of our shared accomplishments! 

  • PCD Awareness Month started as a one-day national walk for the PCD Foundation in the early 2000’s and has now grown into an international awareness month – a dedicated time for PCD families, advocates and supporters to raise awareness and funds for PCD.
  • In 2002 there were two primary ciliary dyskinesia genes identified. Twenty years later there are more than 50! Knowing genes and PCD causing mutations can help with diagnosis and potentially help direct future treatments such as mRNA based therapies. 
  • The PCDF – CRCN was started by the PCD Foundation in 2012 to provide patients with access to specialized PCD diagnosis and care. After establishing procedures, training and a vetting process, the first site accreditation took place in 2015 with Rainbow Babies and UH Cleveland Medical Center. Today, there are more than 40 centers (including GDMCC research sites) across North America and growing! 


Please contact the PCD Foundation for more information on ways to engage with and support this special anniversary year. We look forward to celebrating with you.