Treatment

To date, there is not a single evidence-based therapeutic intervention for PCD. International efforts are underway to address this situation, but until we have good evidence, we rely on the strong expert consensus of experienced clinicians and researchers to determine the most reasonable therapeutic approaches.

In 2015, the PCD Foundation, in collaboration with the North American PCD research group, published a North American PCD Consensus Statement in Pediatric Pulmonology.  This document represents current best practices as defined by the North American Genetic Disorders of Mucociliary Clearance [Research] Consortium and by the PCD Foundation Clinical and Research Centers Network (PCDF-CRCN).