Board of Directors

In 2002, Michele Manion and Lynn Ehrne co-founded the PCD Foundation, and since filled out the board with stellar leadership committed to accomplishing the mission – finding a cure for PCD.

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PCD Foundation Leadership

The PCD Foundation relies on the leadership of a Board of Directors comprised of parents and patients directly affected by PCD. This board is responsible for ensuring proper management of finances, operations and grant-making programs to advance our mission and goals. The board sets the strategic direction and oversees foundation governance as set forth in our incorporation documents and policies.

The PCDF Board of Directors is engaged in day to day management of the activities of the PCDF. In addition, for input and guidance in specialty areas, we rely on expert advice from our Medical and Scientific Council (MSAC) and our non-medical Advisory Council (AC).

Medical & Scientific Advisory Council

The PCDF Medical and Scientific Advisory Council (MSAC) provides guidance and recommendations to the PCDF related to clinical, scientific and research-related activities. This distinguished panel of PCD experts represents a broad spectrum of expertise in both basic and clinical sciences.

MSAC Members

  • Margaret Leigh, MD, Chair, University of North Carolina, Chapel Hill, USA
  • Stephanie Davis, MD, University of North Carolina, Chapel Hill, USA
  • Thomas Ferkol, MD, Washington University, St. Louis, USA
  • Amjad Horani, MD, Washington University, St. Louis, USA
  • Michael Knowles, MD, University of North Carolina, Chapel Hill, USA
  • Steve Lommatzsch, MD, National Jewish Medical Center, USA
  • Kim Nielsen, MD, University of Copenhagen, Denmark
  • Michael O’Connor, MD, Vanderbilt University, USA
  • Ken Olivier, MD, National Heart, Lung, & Blood Institute, USA
  • Heymut Omran, MD, Universitätsklinikum Münster, Germany
  • Deepika Polineni, University of Kansas, USA
  • Felix, Ratjen, MD, Hospital for Sick Children, Canada
  • Rachel Richesson, PhD, University of Michigan, USA
  • Margaret Rosenfeld, MD, University of Washington, Seattle, USA
  • Adam Shapiro, MD, McGill University, Canada
  • Michele Manion, PCD Foundation, USA

Advisory Council

The PCDF Advisory Council (AC) provides guidance and expertise to the PCDF in areas other than clinical, scientific and research.