by Lynn Ehrne | Mar 2, 2022 | Advocacy, EDUCATION, FAMILY
PCD Foundation is hosted a live webinar entitled ‘Mental Health Issues in Children and Adolescents with PCD’ presented by Tamara Vance, MSW LICSW. The presentation provided information on common mental health issues related to PCD among patients as well...
by Lynn Ehrne | Nov 4, 2021 | Advocacy, Diagnosis
Dear PCD Foundation Friends and Family,We are thrilled to announce the PCD Foundation is one of 40 patient-led, rare disease organizations receiving a grant through the Chan Zuckerberg Initiative (CZI)’s Rare As One (RAO) Project. RAO is aimed at supporting and...
by Lynn Ehrne | Nov 25, 2020 | Advocacy, COVID19, EDUCATION
Thank you to everyone that attended the virtual town hall. We received several questions in advance. Many were regarding COVID-19. Continued thanks and appreciation to Dr. Shailendra Das (Texas Children’s Hosp), Dr. Hugo Escobar (Children’s Mercy),Dr. Anne...
by Lynn Ehrne | Jul 22, 2020 | COVID19, EDUCATION
Continued thanks and gratitude to Dr. Shailendra Das (Texas Children’s Hosp) for joining us for the 14th PCD virtual Covid-19 town hall meeting. Please gather your questions for the next call. You can send them in advance to info@pcdfoundation.org. The next call is...
by Lynn Ehrne | Jul 11, 2020 | COVID19, EDUCATION
Continued thanks and gratitude to Dr. Shailendra Das (Texas Children’s Hosp) and Dr. Anne Griffiths (Children’s Minnesota) for joining us for the 13th PCD virtual Covid19 town hall meeting. Please gather your questions for the next call. You can send them in...
