by Lynn Ehrne | Nov 25, 2020 | Advocacy, COVID19, EDUCATION
Thank you to everyone that attended the virtual town hall. We received several questions in advance. Many were regarding COVID-19. Continued thanks and appreciation to Dr. Shailendra Das (Texas Children’s Hosp), Dr. Hugo Escobar (Children’s Mercy),Dr. Anne...
by Lynn Ehrne | Jul 22, 2020 | COVID19, EDUCATION
Continued thanks and gratitude to Dr. Shailendra Das (Texas Children’s Hosp) for joining us for the 14th PCD virtual Covid-19 town hall meeting. Please gather your questions for the next call. You can send them in advance to info@pcdfoundation.org. The next call is...
by Lynn Ehrne | Jul 11, 2020 | COVID19, EDUCATION
Continued thanks and gratitude to Dr. Shailendra Das (Texas Children’s Hosp) and Dr. Anne Griffiths (Children’s Minnesota) for joining us for the 13th PCD virtual Covid19 town hall meeting. Please gather your questions for the next call. You can send them in...
by Lynn Ehrne | Jun 29, 2020 | COVID19, RESEARCH
Asunto: Participe en una encuesta de investigación para pacientes con enfermedades raras y sus familias sobre los impactos de la COVID-19 Hola. Le escribo para informarle sobre un estudio de investigación que está siendo realizado por la Red de Investigación Clínica...
by Lynn Ehrne | Jun 17, 2020 | COVID19, EDUCATION
Many thanks to Dr. Shailendra Das (Texas Children’s Hosp) for joining us for the 12th PCD virtual Covid19 town hall meeting. Please gather your questions for the next call. You can send them in advance to info@pcdfoudnation.org If you missed the Town Hall...
by Lynn Ehrne | Jun 17, 2020 | COVID19, EDUCATION
Recording from Spanish Speaking Town Hall Muchísimas gracias a Dr. Ricardo Mosquera (University of Texas- Houston) y Dr. Wilfredo De Jesús Rojas (University of Puerto Rico- Medical Sciences Campus) por acompañarnos en nuestra segunda reunión del ayuntamiento para PCD...
