EDUCATION

PCDF Research Forum #8: Variation in treatment strategies of Pseudomonas in PCD

Variation in treatment strategies for the eradication of Pseudomonas aeruginosa in primary ciliary dyskinesia across European centers Chronic Respiratory Disease Published July 18 2018 Suzanne Crowley, Mathias Gelderman Holgersen, Kim Gjerum Nielsen A common airway pathogen in PCD is Pseudomonas aeruginosa (Pa), and the prevalence of this bacteria increases with age. In

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PCDF Research Forum #6: Genotype/Phenotype Relationships in PCD

Primary Ciliary Dyskinesia: Longitudinal Study of Lung Disease by Ultrastructure Defect and Genotype Stephanie D. Davis et al. Link to study abstract Understanding and identifying the relationship between genotype (gene mutation) and phenotype (observable clinical traits) will be critical for advancing treatment of PCD. This paper by Davis, et al

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PCDF Research Forum #5: Nocturnal Cough Analysis

Comparison of Nocturnal Cough Analysis in Healthy Subjects and in Patients with Cystic Fibrosis and Primary Ciliary Dyskinesia: A Prospective Observational Study. Radine A, Werner C, Raidt J, Dougherty GW, Kerschke L, Omran H, Grosse-Onnebrink J. This study set out to see if there is a difference in cough frequency between healthy subjects (HS), cystic fibrosis

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PCDF Research Forum #4: Azithromycin for Early Pseudomonas Infection in CF

Azithromycin for Early Pseudomonas Infection in Cystic Fibrosis. The OPTIMIZE Randomized Trial. Summary of Mayer-Hamblett N et al. Azithromycin for Early Pseudomonas Infection in Cystic Fibrosis. The OPTIMIZE Randomized Trial. Am J Respir Crit Care Med. 2018 Nov 1;198(9):1177-1187. doi: 10.1164/rccm.201802-0215OC. It is common in children with cystic fibrosis (and

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PCDF Research Forum #2

The second edition of PCD paper summaries is here, and this week we look at CT scans in PCD vs. CF! Bronchiectasis in PCD looks different to CF on CT scan Summary of Robinson P, Morgan L. Bronchiectasis in PCD looks different to CF on CT scan. Multidiscip Respir Med. 2018;13(Suppl

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It’s PCD (Primary Ciliary Dyskinesia) Week at ATS! 

UPDATE: Link to the recorded webinar: Fact or Fiction – Common Myths Encountered in Genetic Testing for Primary Ciliary Dyskinesia ——————————————————————————————————————————————————————— The American Thoracic Society (ATS) and the PCD Foundation are pleased to offer the following PCD patient education and awareness activities during PCD Week at ATS, July 15-18, 2018: July

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