Dear PCD Foundation Friends and Family,
We are thrilled to announce the PCD Foundation is one of 40 patient-led, rare disease organizations receiving a grant through the Chan Zuckerberg Initiative (CZI)’s Rare As One (RAO) Project. RAO is aimed at supporting and lifting up the work that patient communities are doing to drive the progress in the fight against rare disease.
With the support of the RAO Project, the PCD Foundation will begin a groundbreaking research initiative focused on enhancing health outcomes and improving access to genetic testing for PCD and related disorders in underserved areas across the Americas. The expansion of gene identification is a critical step needed to improve early diagnosis of this rare disease and provide families with hope for the future.
We look forward to sharing more as this important work gets started. To learn more about CZI’s Rare As One Project and grant recipients, click here.
The PCD Foundation looks forward to keeping you informed about this partnership. In the meantime, we encourage you to follow the below links for more information about CZI, RAO’s grantee network and more!