by Lynn Ehrne | Jun 21, 2024 | EDUCATION, RESEARCH, Therapies
PCD Foundation hosted a live webinar entitled:Fueling Research in PCD Presented by :Michele Manion, PCD FoundationGuest Speaker:John Matthews, MBBS, MCRP, PhDChief Medical OfficerReCode TherapeuticsLearn more about the importance of research, including the...
by Lynn Ehrne | May 7, 2024 | Advocacy, RESEARCH, Therapies
National Patient Experience Week April 29, 2024- May 3rd, 2024. We are proud to partner with ReCode Therapeutics on a video project, shedding light on the patient experience through the patient lens. PART 1: Shedding light on PCD- IntroductionPatient Experience Week...
by Lynn Ehrne | Dec 7, 2023 | EDUCATION, RESEARCH
PCD Foundation hosted a live webinar entitled:An Introduction to Clinical Trials. Presented by Ramona Doyle, MD.Clinical Professor of Medicine, UCSFConsultant, ReCode Therapeutics Individuals with PCD, regardless of whether their diagnosis has been genetically...
by Michele Manion | Mar 13, 2023 | Advocacy, RESEARCH
February 2022 There are several opportunities coming up in the very near future, in the US, Canada, and Europe (and possibly other countries) for mRNA therapies for PCD. We are planning a town hall this month to discuss what is on the horizon, what the community...
by Lynn Ehrne | Mar 10, 2022 | Diagnosis, EDUCATION, RESEARCH
The PCD Foundation hosted a live webinar entitled:Clearing the Way: an update on PCD research,presented by Michele Manion, PCD Foundation Executive Director.PCD research is moving full-speed ahead! Learn more about what we have learned so far, what still needs to...
by Lynn Ehrne | Mar 2, 2022 | Diagnosis, EDUCATION, RESEARCH
PCD Foundation hosted a live webinar entitled:How common are PCD genetic variants in the general population?,presented by William Hannah, MD and Benjamin Gaston, MD. The presentation will focus on the paper, ‘The global prevalence and ethnic heterogeneity of...
