by Lynn Ehrne | Mar 2, 2022 | Diagnosis, EDUCATION, RESEARCH
PCD Foundation hosted a live webinar entitled:How common are PCD genetic variants in the general population?,presented by William Hannah, MD and Benjamin Gaston, MD. The presentation will focus on the paper, ‘The global prevalence and ethnic heterogeneity of...
by Lynn Ehrne | Mar 2, 2022 | Advocacy, EDUCATION, FAMILY
PCD Foundation is hosted a live webinar entitled ‘Mental Health Issues in Children and Adolescents with PCD’ presented by Tamara Vance, MSW LICSW. The presentation provided information on common mental health issues related to PCD among patients as well...
by Billy Anton | Nov 22, 2021 | EDUCATION, RESEARCH
PCDF Research Forum Efficacy and Safety of Azithromycin Maintenance Therapy in Primary Ciliary Dyskinesia (BESTCILIA): A Multicenter, Double-blind, Randomized, Placebo-controlled Phase 3 Trial Kobbernagel et al Summary by Andrew Sadowski Article Link Quick Summary The...
by Michele Manion | Jun 30, 2021 | EDUCATION
The airways (bronchial tubes) in the lung are the conduit by which oxygen from outside air is moved to the tiny air sacs, called alveoli, at the ends of the bronchial tubes where gas exchange occurs, allowing oxygen to enter the blood stream to be used by the cells of...
by Michele Manion | Feb 26, 2021 | EDUCATION
Primary ciliary dyskinesia (PCD) is an umbrella term for disorders affecting the structure and/or function of cilia. These defects are due to changes (variants) on genes responsible for producing proteins required for building ciliary structures or for supporting...
by Lynn Ehrne | Nov 25, 2020 | Advocacy, COVID19, EDUCATION
Thank you to everyone that attended the virtual town hall. We received several questions in advance. Many were regarding COVID-19. Continued thanks and appreciation to Dr. Shailendra Das (Texas Children’s Hosp), Dr. Hugo Escobar (Children’s Mercy),Dr. Anne...
