by Lynn Ehrne | Jul 11, 2020 | COVID19, EDUCATION
Continued thanks and gratitude to Dr. Shailendra Das (Texas Children’s Hosp) and Dr. Anne Griffiths (Children’s Minnesota) for joining us for the 13th PCD virtual Covid19 town hall meeting. Please gather your questions for the next call. You can send them in...
by Lynn Ehrne | Jun 17, 2020 | COVID19, EDUCATION
Many thanks to Dr. Shailendra Das (Texas Children’s Hosp) for joining us for the 12th PCD virtual Covid19 town hall meeting. Please gather your questions for the next call. You can send them in advance to info@pcdfoudnation.org If you missed the Town Hall...
by Lynn Ehrne | Jun 17, 2020 | COVID19, EDUCATION
Recording from Spanish Speaking Town Hall Muchísimas gracias a Dr. Ricardo Mosquera (University of Texas- Houston) y Dr. Wilfredo De Jesús Rojas (University of Puerto Rico- Medical Sciences Campus) por acompañarnos en nuestra segunda reunión del ayuntamiento para PCD...
by Lynn Ehrne | Jun 17, 2020 | COVID19, EDUCATION
This exciting international survey will track COVID-19 infections in individuals with PCD. This is a particularly important effort, as it is the only survey focused specifically on PCD. Please join with PCD families from around the world to help with this critical...
by Lynn Ehrne | Jun 17, 2020 | COVID19, EDUCATION
Researchers from the Rare Diseases Clinical Research Network (RDCRN) are looking for input from patients to better understand how COVID-19 is impacting the rare diseases community. As a partner patient advocacy group of the RDCRN for the past 15 years (through the...
by Lynn Ehrne | Jun 13, 2020 | COVID19, EDUCATION
Continued thanks and appreciation to Dr. Shailendra Das (Texas Children’s Hosp), and Dr. Anne Griffiths (Children’s Minnesota), for joining us for the 10th PCD virtual Covid19 town hall meeting. Special ‘thank you’ to two PCD patients that are also...
