by Michele Manion | Feb 14, 2024 | Advocacy, EDUCATION
Why do challenging lung infections occur in PCD?Primary Ciliary Dyskinesia (PCD) is a rare genetic disorder that affects the cilia, which are tiny, hair-like structures that line the respiratory tract and other parts of the body. These cilia play a crucial role in...
by Lynn Ehrne | Jan 22, 2024 | Diagnosis, EDUCATION
PCD Foundation hosted a live webinar entitled:ThinkPCD Genetic Testing Program The latest webinar in the series from ReCode Therapeutics, will provide you with information about a genetic testing program called ThinkPCD. You will learn about the genetics of PCD and...
by Lynn Ehrne | Dec 7, 2023 | EDUCATION, RESEARCH
PCD Foundation hosted a live webinar entitled:An Introduction to Clinical Trials. Presented by Ramona Doyle, MD.Clinical Professor of Medicine, UCSFConsultant, ReCode Therapeutics Individuals with PCD, regardless of whether their diagnosis has been genetically...
by Michele Manion | Mar 13, 2023 | Advocacy, RESEARCH
February 2022 There are several opportunities coming up in the very near future, in the US, Canada, and Europe (and possibly other countries) for mRNA therapies for PCD. We are planning a town hall this month to discuss what is on the horizon, what the community...
by Lynn Ehrne | Mar 10, 2022 | Diagnosis, EDUCATION, RESEARCH
The PCD Foundation hosted a live webinar entitled:Clearing the Way: an update on PCD research,presented by Michele Manion, PCD Foundation Executive Director.PCD research is moving full-speed ahead! Learn more about what we have learned so far, what still needs to...
