by Billy Anton | Nov 22, 2021 | EDUCATION, RESEARCH
PCDF Research Forum Efficacy and Safety of Azithromycin Maintenance Therapy in Primary Ciliary Dyskinesia (BESTCILIA): A Multicenter, Double-blind, Randomized, Placebo-controlled Phase 3 Trial Kobbernagel et al Summary by Andrew Sadowski Article Link Quick Summary The...
by Lynn Ehrne | Jun 29, 2020 | COVID19, RESEARCH
Asunto: Participe en una encuesta de investigación para pacientes con enfermedades raras y sus familias sobre los impactos de la COVID-19 Hola. Le escribo para informarle sobre un estudio de investigación que está siendo realizado por la Red de Investigación Clínica...
by Michele Manion | Oct 9, 2019 | RESEARCH
We are delighted to announce that the Genetic Disorders of Mucociliary Clearance Consortium (GDMCC) has been re-funded for another five years (years 15-20) of research on PCD and related disorders. Here is the official announcement from the National Center for...
by Lynn Ehrne | Jun 28, 2019 | EDUCATION, Meetings, RESEARCH
The Conference will be held on August 21-23, 2019, at the Crowne Plaza Hotel, Minneapolis, MN 55420. Every conference, the PCDF brings together over 100 researchers, physician & allied health care professional around the world to collaborate, educate and expand on...
by Billy Anton | Apr 22, 2019 | EDUCATION, RESEARCH
Variation in treatment strategies for the eradication of Pseudomonas aeruginosa in primary ciliary dyskinesia across European centers Chronic Respiratory Disease Published July 18 2018 Suzanne Crowley, Mathias Gelderman Holgersen, Kim Gjerum Nielsen A common...
