by Lynn Ehrne | Apr 8, 2020 | Advocacy, COVID19, EDUCATION
Big thanks to Dr. Anne Griffiths (Children’s Minnesota) and Dr. Shailendra Das (Texas Children’s Hosp), for joining us for the 3rd PCD virtual Covid19 town hall meeting. We are planning to do more of these as our healthcare provider’s...
by Lynn Ehrne | Mar 30, 2020 | Advocacy, COVID19, EDUCATION
Big thanks to Dr. Adam Shapiro (Montreal Children’s Hosp), Dr. Pamela McShane ( University of Texas Health Science Center at Tyler), Dr. Amjad Horani (St. Louis Children’s Hosp) and Dr. Anne Griffiths (Children’s Minnesota) for joining us for our...
by Michele Manion | Nov 26, 2019 | Diagnosis, EDUCATION, Genetics
The first thing to know is that there is currently no test for PCD that picks up 100% of cases or that can totally rule PCD out. The second thing to be aware of is that diagnostic practices for PCD vary by country and sometimes even by region within a country. A...
by Lynn Ehrne | Sep 12, 2019 | EDUCATION, Meetings
Collaborating with international PCD doctors and researchers is crucial for diagnosis and research. PCD is a global disease! The Department of Pediatrics, Washington University School of Medicine, part of the GDMCC and PCD Foundation network is sponsoring in part, two...
by Lynn Ehrne | Jun 28, 2019 | EDUCATION, Meetings, RESEARCH
The Conference will be held on August 21-23, 2019, at the Crowne Plaza Hotel, Minneapolis, MN 55420. Every conference, the PCDF brings together over 100 researchers, physician & allied health care professional around the world to collaborate, educate and expand on...
by Billy Anton | Apr 22, 2019 | EDUCATION, RESEARCH
Variation in treatment strategies for the eradication of Pseudomonas aeruginosa in primary ciliary dyskinesia across European centers Chronic Respiratory Disease Published July 18 2018 Suzanne Crowley, Mathias Gelderman Holgersen, Kim Gjerum Nielsen A common...
