by Lynn Ehrne | Jun 21, 2024 | EDUCATION, RESEARCH, Therapies
PCD Foundation hosted a live webinar entitled:Fueling Research in PCD Presented by :Michele Manion, PCD FoundationGuest Speaker:John Matthews, MBBS, MCRP, PhDChief Medical OfficerReCode TherapeuticsLearn more about the importance of research, including the...
by Michele Manion | Feb 14, 2024 | Advocacy, EDUCATION
Why do challenging lung infections occur in PCD?Primary Ciliary Dyskinesia (PCD) is a rare genetic disorder that affects the cilia, which are tiny, hair-like structures that line the respiratory tract and other parts of the body. These cilia play a crucial role in...
by Lynn Ehrne | Jan 22, 2024 | Diagnosis, EDUCATION
PCD Foundation hosted a live webinar entitled:ThinkPCD Genetic Testing Program The latest webinar in the series from ReCode Therapeutics, will provide you with information about a genetic testing program called ThinkPCD. You will learn about the genetics of PCD and...
by Lynn Ehrne | Dec 20, 2023 | EDUCATION
PCD Foundation hosted a live webinar entitled:A New Clinical Trials for DNAI1 PCD. Learn about an upcoming clinical trial of an mRNA therapy developed by ReCode Therapeutics that will target PCD-causing genetic defects in the DNAI1 gene. Presented by Ramona Doyle,...
by Lynn Ehrne | Dec 7, 2023 | EDUCATION, RESEARCH
PCD Foundation hosted a live webinar entitled:An Introduction to Clinical Trials. Presented by Ramona Doyle, MD.Clinical Professor of Medicine, UCSFConsultant, ReCode Therapeutics Individuals with PCD, regardless of whether their diagnosis has been genetically...
by Lynn Ehrne | Mar 10, 2022 | Diagnosis, EDUCATION, RESEARCH
The PCD Foundation hosted a live webinar entitled:Clearing the Way: an update on PCD research,presented by Michele Manion, PCD Foundation Executive Director.PCD research is moving full-speed ahead! Learn more about what we have learned so far, what still needs to...
