PCD Foundation Call to Action on Graham-Cassidy

The proposed Graham-Cassidy bill is bad for individuals with rare disorders. Our colleagues at the United Mitochondrial Disease Foundation (UMDF) engage an independent legislative advisory group, Holland & Knight, to assess the impact of proposed legislation on...
PCDF Consensus Statement

PCDF Consensus Statement

In 2015, some of the brightest minds in PCD, including top pulmonologists, medical professionals, and PCDF founder and executive director Michele Manion, published recommendations for diagnosis, monitoring, and treatment of primary ciliary dyskinesia. In developing...