Blog & News

PCDF Consensus Statement

In 2015, some of the brightest minds in PCD, including top pulmonologists, medical professionals, and PCDF founder and executive director Michele Manion, published recommendations for diagnosis, monitoring, and treatment of primary ciliary dyskinesia. In developing this consensus statement, these experts used their knowledge of PCD and clinical experiences to compile

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CLEAN-PCD Trial

PCD NEEDS YOU! Did you know that there are now 16 sites open and accepting patients for the CLEAN-PCD (VX 371 ENaC inhibitor) study? 14 of them are in North America. This study of a novel compound to help hydrate the airways and aid in mucus clearance is important for

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