Blog & News

The PCDF Turns 15… Let’s Celebrate!

The PCDF is pleased to announce the celebration of 15 years of supporting research and patient support, which will take place on October 11th 2017 in Chicago, IL. The benefit will honor Drs. Michael Knowles and Margaret Leigh, who have been the pioneers of PCD treatment, research, and care. In

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PCD Foundation Partners with TRAIN!

Good news! The PCD Foundation is now a member organization of The Research Acceleration and Innovation Network (TRAIN), a program of Faster Cures. The goal of TRAIN is to bring patient groups, researchers, government agencies, industry and private funders together to accelerate research on rare disorders. Membership in the network

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ATS Partner Grants for 2016

The PCD Foundation is delighted to announce the grantees for our American Thoracic Society (ATS) PCD Foundation Partner Grants for 2016. Thanks to the generous support of two PCD families, we were actually able to support three research grants for this cycle. All have direct application to PCD: *Martina Brueckner,

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PCDF Consensus Statement

In 2015, some of the brightest minds in PCD, including top pulmonologists, medical professionals, and PCDF founder and executive director Michele Manion, published recommendations for diagnosis, monitoring, and treatment of primary ciliary dyskinesia. In developing this consensus statement, these experts used their knowledge of PCD and clinical experiences to compile

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PCD NEEDS YOU! Did you know that there are now 16 sites open and accepting patients for the CLEAN-PCD (VX 371 ENaC inhibitor) study? 14 of them are in North America. This study of a novel compound to help hydrate the airways and aid in mucus clearance is important for

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