Blog & News

PCDF Research Forum #6: Genotype/Phenotype Relationships in PCD

Primary Ciliary Dyskinesia: Longitudinal Study of Lung Disease by Ultrastructure Defect and Genotype Stephanie D. Davis et al. Link to study abstract Understanding and identifying the relationship between genotype (gene mutation) and phenotype (observable clinical traits) will be critical for advancing treatment of PCD. This paper by Davis, et al

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PCDF Research Forum #5: Nocturnal Cough Analysis

Comparison of Nocturnal Cough Analysis in Healthy Subjects and in Patients with Cystic Fibrosis and Primary Ciliary Dyskinesia: A Prospective Observational Study. Radine A, Werner C, Raidt J, Dougherty GW, Kerschke L, Omran H, Grosse-Onnebrink J. This study set out to see if there is a difference in cough frequency between healthy subjects (HS), cystic fibrosis

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PCDF Research Forum #4: Azithromycin for Early Pseudomonas Infection in CF

Azithromycin for Early Pseudomonas Infection in Cystic Fibrosis. The OPTIMIZE Randomized Trial. Summary of Mayer-Hamblett N et al. Azithromycin for Early Pseudomonas Infection in Cystic Fibrosis. The OPTIMIZE Randomized Trial. Am J Respir Crit Care Med. 2018 Nov 1;198(9):1177-1187. doi: 10.1164/rccm.201802-0215OC. It is common in children with cystic fibrosis (and

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PCDF Research Forum #2

The second edition of PCD paper summaries is here, and this week we look at CT scans in PCD vs. CF! Bronchiectasis in PCD looks different to CF on CT scan Summary of Robinson P, Morgan L. Bronchiectasis in PCD looks different to CF on CT scan. Multidiscip Respir Med. 2018;13(Suppl

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It’s PCD (Primary Ciliary Dyskinesia) Week at ATS! 

UPDATE: Link to the recorded webinar: Fact or Fiction – Common Myths Encountered in Genetic Testing for Primary Ciliary Dyskinesia ——————————————————————————————————————————————————————— The American Thoracic Society (ATS) and the PCD Foundation are pleased to offer the following PCD patient education and awareness activities during PCD Week at ATS, July 15-18, 2018: July

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Hot off the Presses , the ATS Clinical Practice Guideline for the Diagnosis of PCD is now (freely) available at the American Thoracic Society website!

Using rigorous evidence-based analysis, this document provides an overview of available information related to best practices for diagnosing PCD and addresses some of the challenges and misinformation currently confronting clinicians and patients in their PCD diagnostic journey. Enjoy! Please note, this is located in the ‘pediatric’ section of the ATS

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ATS PAR/PCD Foundation 2018 Travel Grant Awardees

We’re proud to sponsor the outstanding abstract submissions of this year’s ATS Travel Grant awardees. Congratulations, Dr. Goyal and Dr. Hannah! The first abstract is from Vikas Goyal, MBBS, FRACP and the Australian group comparing two forms of antibiotic therapy for children with bronchiectasis (including PCD). You can access the

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