Blog & News
- Fueling Research In PCD Webinar- 4th in a series from ReCode Therapeutics June 21, 2024
- Patient Experience Week- ReCode Therapeutics May 7, 2024
- Challenging Lung Infections in PCD February 14, 2024
- ReCode Therapeutics Webinar 3: ThinkPCD Genetic Testing Program January 22, 2024
- Webinar #2 from Recode Therapeutics: A New Clinical Trial for DNAI1 PCD December 20, 2023
- Webinar from ReCode Therapeutics: An Introduction to Clinical Trials December 7, 2023
- mRNA Potential for PCD March 13, 2023
- Clearing the Way: An update on PCD research March 10, 2022
- Webinar: How common are PCD genetic variants in the general population? March 2, 2022
- Webinar: Mental Health Issues in Children and Adolescents with PCD March 2, 2022
- PCDF Research Forum: Efficacy and Safety of Azithromycin Maintenance Therapy in Primary Ciliary Dyskinesia November 22, 2021
- PCD Foundation joins Chan Zuckerberg Initiative’s Rare As One Network November 4, 2021
- Mucociliary Clearance June 30, 2021
- Reproductive Health in PCD February 26, 2021
- 11/16/2020 Virtual Town Hall Recording November 25, 2020
- COVID-19 07/13/2020 Town Hall July 22, 2020
- COVID-19 06/29/2020 Town Hall July 11, 2020
- RDCRN COVID-19 Impacto en enfermedades raras – Encuesta (solo EE. UU.) June 29, 2020
- COVID-19 06/15/2020 Town Hall June 17, 2020
- Spanish Speaking Town Hall 06/04/2020 June 17, 2020
- International Survey: COVID-19 infections in people with Primary Ciliary Dyskinesia (worldwide) June 17, 2020
- RDCRN COVID-19 Impact On Rare Diseases- Survey (US Only) June 17, 2020
- COVID-19 06/01/2020 Town Hall June 13, 2020
- Covid-19 05/18/2020 Town Hall May 22, 2020
- Covid-19 05/11/2020 Town Hall May 15, 2020
- Covid-19 05/04/2020 Town Hall May 8, 2020
- COVID-19 Town Hall 04/27/2020 May 1, 2020
- COVID-19 Town Hall 04/20/2020 April 24, 2020
- COVID-19 Town Hall 04/13/2020 April 15, 2020
- Covid19 Town Hall 04/06/2020 April 8, 2020
- Spanish Speaking Town Hall 04/03/2020 April 5, 2020
- Corona Virus Newsletter 03/28/2020 April 4, 2020
- PCD Town Hall on COVID19 03/30/2020 March 30, 2020
- COVID 19 Statement from the Genetic Disorders of Mucociliary Clearance Consortium March 17, 2020
- PCD Diagnosis in 2019: Where We Are Now & Where We Are Going November 26, 2019
- Vertex Announces FDA-Approval of New Triple Drug Compound Effective for the Most Common Mutation in Cystic Fibrosis October 24, 2019
- Next 5 Year Round of PCD Research Re-funded October 9, 2019
- Global PCD Connections: Collaborating in Israel and Palestine September 12, 2019
- PCD Foundation Partners with Prometheus Research to Develop an Innovative Platform to Advance Research, Diagnosis, Care and Cures for PCD August 23, 2019
- Register now: ‘PCD on the Move’, 2019 Scientific Conference June 28, 2019
- PCDF Research Forum #8: Variation in treatment strategies of Pseudomonas in PCD April 22, 2019
- PCDF Research Forum #7: Rapid Advances in PCD Research March 21, 2019
- PCDF Research Forum #6: Genotype/Phenotype Relationships in PCD February 25, 2019
- PCDF Research Forum #5: Nocturnal Cough Analysis January 31, 2019
- PCDF Research Forum #4: Azithromycin for Early Pseudomonas Infection in CF January 10, 2019
- PCDF Research Forum #3: Discovery of Two New PCD Causing Genes December 15, 2018
- PCDF Research Forum #2 November 29, 2018
- Recent International Study on Lung Function Decline with Age in PCD October 22, 2018
- It’s PCD (Primary Ciliary Dyskinesia) Week at ATS! July 11, 2018
- Hot off the Press! The ATS Clinical Practice Guideline for the Diagnosis of PCD is now (freely) available at the American Thoracic Society website! June 28, 2018