Blog & News

It’s PCD (Primary Ciliary Dyskinesia) Week at ATS! 

UPDATE: Link to the recorded webinar: Fact or Fiction – Common Myths Encountered in Genetic Testing for Primary Ciliary Dyskinesia ——————————————————————————————————————————————————————— The American Thoracic Society (ATS) and the PCD Foundation are pleased to offer the following PCD patient education and awareness activities during PCD Week at ATS, July 15-18, 2018: July

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Hot off the Presses , the ATS Clinical Practice Guideline for the Diagnosis of PCD is now (freely) available at the American Thoracic Society website!

Using rigorous evidence-based analysis, this document provides an overview of available information related to best practices for diagnosing PCD and addresses some of the challenges and misinformation currently confronting clinicians and patients in their PCD diagnostic journey. Enjoy! Please note, this is located in the ‘pediatric’ section of the ATS

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ATS PAR/PCD Foundation 2018 Travel Grant Awardees

We’re proud to sponsor the outstanding abstract submissions of this year’s ATS Travel Grant awardees. Congratulations, Dr. Goyal and Dr. Hannah! The first abstract is from Vikas Goyal, MBBS, FRACP and the Australian group comparing two forms of antibiotic therapy for children with bronchiectasis (including PCD). You can access the

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PCD Foundation Call to Action on Graham-Cassidy

The proposed Graham-Cassidy bill is bad for individuals with rare disorders. Our colleagues at the United Mitochondrial Disease Foundation (UMDF) engage an independent legislative advisory group, Holland & Knight, to assess the impact of proposed legislation on the UMDF community. UMDF has generously shared Holland & Knight’s overview of Graham-Cassidy

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The PCDF Turns 15… Let’s Celebrate!

The PCDF is pleased to announce the celebration of 15 years of supporting research and patient support, which will take place on October 11th 2017 in Chicago, IL. The benefit will honor Drs. Michael Knowles and Margaret Leigh, who have been the pioneers of PCD treatment, research, and care. In

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PCD Foundation Partners with TRAIN!

Good news! The PCD Foundation is now a member organization of The Research Acceleration and Innovation Network (TRAIN), a program of Faster Cures. The goal of TRAIN is to bring patient groups, researchers, government agencies, industry and private funders together to accelerate research on rare disorders. Membership in the network

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