by pcdfoundation | Oct 22, 2018 | EDUCATION, RESEARCH
Below is a summary of two recent articles from the European Respiratory Journal looking at lung function in PCD: 1) Sejal Saglani wrote an editorial entitled “Lung Function in Primary Ciliary Dyskinesia: Breaking the Myth that this is a Mild Disease” and Florian...
by pcdfoundation | Feb 11, 2017 | Uncategorized
Good news! The PCD Foundation is now a member organization of The Research Acceleration and Innovation Network (TRAIN), a program of Faster Cures. The goal of TRAIN is to bring patient groups, researchers, government agencies, industry and private funders together to...
by pcdfoundation | Feb 10, 2017 | Uncategorized
The PCD Foundation is delighted to announce the grantees for our American Thoracic Society (ATS) PCD Foundation Partner Grants for 2016. Thanks to the generous support of two PCD families, we were actually able to support three research grants for this cycle. All have...
by pcdfoundation | Feb 10, 2017 | Advocacy, Diagnosis
In 2015, some of the brightest minds in PCD, including top pulmonologists, medical professionals, and PCDF founder and executive director Michele Manion, published recommendations for diagnosis, monitoring, and treatment of primary ciliary dyskinesia. In developing...
by pcdfoundation | Jan 12, 2017 | Uncategorized
PCD NEEDS YOU! Did you know that there are now 16 sites open and accepting patients for the CLEAN-PCD (VX 371 ENaC inhibitor) study? 14 of them are in North America. This study of a novel compound to help hydrate the airways and aid in mucus clearance is important for...
