Lynn Ehrne is the corporate officer (secretary) and a board member of the PCD Foundation, which she co‐founded in 2002. As an individual with PCD herself, Lynn knows first‐hand the importance of improving healthcare and quality of life for those with PCD. She provides a strong patient voice to board decisions and provides leadership on issues related to patient engagement. She chairs the Patient Services Committee, which oversees patient education, online outreach through web and social media, and the volunteer task force. Her exceptional interpersonal skills and deep commitment to the PCD community set the tone for our patient outreach and education programs and are invaluable assets in engaging the broader community, as well.

Lynn is also employed by the PCDF as an executive assistant and clinical centers coordinator. She resides in Rochester, New York with her husband Ken and son Michael.