PCDF Centers
Access to high-quality diagnostic and treatment for all individuals with primary ciliary dyskinesia (PCD) is a primary goal of the PCD Foundation. As we continue to learn more about PCD and develop better standards for identifying affected individuals and treating the consequences of inherited ciliary dysfunction, we plan to grow our network of centers with PCD expertise.
| City |
Adult Center |
Pediatric Center |
Accreditation Complete |
| Ann Arbor, MI |
University of Michigan |
Mott’s Children’s Hospital |
Yes |
| Atlanta, GA |
N/A |
Children’s Healthcare of Atlanta |
Yes |
| Birmingham, AL |
University of Alabama |
Children’s of Alabama |
Yes |
| Boston, MA |
Brigham and Women’s Hospital |
Boston Children’s Hospital |
Yes |
| Cayey, Puerto Rico |
|
Pediatric Rare Lung and Asthma Institute |
Yes |
| Charlottesville, VA |
University of Virginia Health System |
University of Virginia Health System |
Yes |
| Chicago, IL |
Northwestern Memorial Hospital |
Lurie Children’s Hospital of Chicago |
Pending Lurie |
| Cleveland, OH |
|
Rainbow Babies Hospital |
Yes |
| Columbus, OH |
N/A |
Nationwide Children’s Hospital |
Yes |
| Dallas |
UT Southwestern Medical Center |
Children’s Health |
Yes |
| Denver, CO |
National Jewish Health |
N/A |
Yes |
| Farmington/Hartford, CT |
UCONN Health |
Connecticut Children’s Medical Center |
Yes |
| Houston, TX |
N/A |
- Texas Children’s Hospital
- UT Health
|
Yes |
| Indianapolis, IN |
N/A |
Indiana University |
Yes |
| Kansas City, MO |
University of Kansas Medical Center |
Children’s Mercy |
Yes |
| Little Rock, AR |
|
Arkansas Children’s Hospital |
Yes |
| Memphis, TN |
N/A |
Le Bonheur Children’s Hospital |
Yes |
| Minneapolis, MN |
Center for Lung Science & Health |
Children’s Respiratory and Critical Care Specialists
Children’s Hospital of Minnesota
|
Yes
Yes
|
| Nashville, TN |
N/A |
Children’s Hospital at Vanderbilt |
Yes |
| New York, NY |
Columbia University Medical Center
|
Pediatric Lung and Breathings Disorders NYC |ColumbiaDoctors
Children’s Health Hassenfeld Children’s Hospital at NYU Langone
|
Yes
Yes
|
| Orange, CA |
|
Children’s Hospital of Orange County |
Yes |
| Philadelphia, PA |
Perelman Center for Advanced Medicine |
Children’s Hospital of Philadelphia |
Yes |
| Rochester, MN |
Mayo Clinic |
Mayo Clinic |
Pending |
| San Francisco, CA |
UCSF Health |
Benioff Children’s Hospital |
Yes |
| Tyler, TX |
UT Health East Texas |
|
Yes |
| Valhalla, NY |
New York Medical College |
Maria Fareri Children’s Hospital at Westchester Medical Center |
Yes |
| Vancouver, BC Canada |
|
BC Children’s Hospital |
Yes |
Genetic Disorders of Mucociliary Clearance Consortium (GDMCC) Research Sites
The Genetic Disorders of Mucociliary Clearance Consortium (GDMCC) exists to bring together physicians and patients for the sake of Mucociliary Clearance Diseases research. Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments (GDMCC site).
| City |
Adult Site |
Pediatric Site |
| Aurora, CO |
N/A |
The Children’s Hospital Colorado |
| Bethesda, MD |
National Heart, Lung and Blood Institute |
National Heart, Lung and Blood Institute |
| Chapel Hill, NC |
University of North Carolina at Chapel Hill |
University of North Carolina at Chapel Hill |
| Montreal, Quebec, Canada |
McGill University Health Centre |
Montreal Children’s Hospital |
| Palo Alto, CA |
Stanford University Medical Center |
Stanford University Medical Center |
| Seattle, WA |
N/A |
Seattle Children’s Hospital |
| St. Louis, MO |
Washington University |
Washington University |
| Toronto, Ontario, Canada |
N/A |
The Hospital for Sick Children |
PCDF Accredited EM Diagnostic Centers
Affiliate Centers
Affiliate Centers are very similar to PCDF Centers from a treatment standpoint, however, these institutions do not use all diagnostic tools specific to PCD, namely nasal nitric oxide (nNO) testing. Consequently, a comprehensive diagnostic workup cannot be conducted at these sites.
