The Primary Ciliary Dyskinesia Foundation Network for Clinical Trials (PCDF NCT): Proposals for Founding Regional Hub-Centers (Development Phase)
Summary of Purpose: To invite applications from academic medical centers in the United States to join the development phase for the Primary Ciliary Dyskinesia Foundation Network for Clinical Trials (PCDF NCT). The PCDF NCT is envisioned as a catalyst to facilitate efficient, effective clinical trials, observational and translational research programs, patient engagement, and quality improvement initiatives leading to improved care, treatments, and cures for patients and families affected by PCD.
Key Dates
· Opportunity Announcement: May 23, 2025
· Letter of Intent Due: June 13, 2025
A Letter of Intent is required, containing the following elements:
- Names of partner institutions
- Names, credentials and role(s) of key personnel
- Contact information for the contact PI (email, phone, address)
- Estimated numbers of adult (> 18yo) and pediatric (<18yo) patients with PCD seen regularly for clinical follow-up at the institution(s) – broken down by each partner institution as applicable
- Clarification of any special circumstances or permissions that may be needed, as indicated in the text of the opportunity below
Letters of Intent should be addressed to the PCD Foundation and emailed as a PDF attachment to Kristin Wavell-Shifflett (KristinWS@pcdfoundation.org)
· Application Due Date: July 15, 2025
· Awardees Notified and Public Announcement: Quarter 4 – 2025
· Earliest Start Date: February 1, 2026
For more information or questions, please contact Kristin Wavell-Shifflett at the PCD Foundation (KristinWS@pcdfoundation.org)