Find a Center

PCDF Centers

Access to high-quality diagnostic and treatment for all individuals with primary ciliary dyskinesia (PCD) is a primary goal of the PCD Foundation. As we continue to learn more about PCD and develop better standards for identifying affected individuals and treating the consequences of inherited ciliary dysfunction, we plan to grow our network of centers with PCD expertise.

City Adult Center Pediatric Center Accreditation Complete
Ann Arbor, MI University of Michigan Mott’s Children’s Hospital Yes
Atlanta, GA N/A Children’s Healthcare of Atlanta Yes
Birmingham, AL University of Alabama Children’s of Alabama Yes
Boston, MA Brigham and Women’s Hospital Boston Children’s Hospital Yes
Cayey, Puerto Rico   Pediatric Rare Lung and Asthma Institute Yes
Charlottesville, VA University of Virginia Health System University of Virginia Health System Yes
Chicago, IL Northwestern Memorial Hospital Lurie Children’s Hospital of Chicago Pending Lurie
Cleveland, OH   Rainbow Babies Hospital Yes
Columbus, OH N/A Nationwide Children’s Hospital Yes
Dallas UT Southwestern Medical Center Children’s Health Yes
Denver, CO National Jewish Health N/A Yes
Farmington/Hartford, CT UCONN Health Connecticut Children’s Medical Center  Yes
Houston, TX N/A
  1. Texas Children’s Hospital
  2. UT Health
 Yes
Indianapolis, IN N/A Indiana University Yes
Kansas City, MO University of Kansas Medical Center Children’s Mercy Yes
Little Rock, AR   Arkansas Children’s Hospital Yes
Minneapolis, MN Center for Lung Science & Health Children’s Respiratory and Critical Care Specialists

Children’s Hospital of Minnesota

Yes

Yes
Nashville, TN N/A Children’s Hospital at Vanderbilt Yes
New York, NY

Columbia University Medical Center

 

 

Pediatric Lung and Breathings Disorders NYC |ColumbiaDoctors

Children’s Health Hassenfeld Children’s Hospital at NYU Langone

Yes

Yes
Orange, CA   Children’s Hospital of Orange County Yes
Philadelphia, PA Perelman Center for Advanced Medicine Children’s Hospital of Philadelphia Yes
Rochester, MN Mayo Clinic Mayo Clinic  Pending
San Francisco, CA UCSF Health Benioff Children’s Hospital Yes
Tyler, TX UT Health East Texas   Yes
Valhalla, NY New York Medical College Maria Fareri Children’s Hospital at Westchester Medical Center Yes
Vancouver, BC Canada   BC Children’s Hospital Yes

Genetic Disorders of Mucociliary Clearance Consortium (GDMCC) Research Sites

The Genetic Disorders of Mucociliary Clearance Consortium (GDMCC) exists to bring together physicians and patients for the sake of Mucociliary Clearance Diseases research. Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments (GDMCC site).

City Adult Site Pediatric Site
Aurora, CO N/A The Children’s Hospital Colorado
Bethesda, MD National Heart, Lung and Blood Institute National Heart, Lung and Blood Institute
Chapel Hill, NC University of North Carolina at Chapel Hill University of North Carolina at Chapel Hill
Montreal, Quebec, Canada McGill University Health Centre Montreal Children’s Hospital
Palo Alto, CA Stanford University Medical Center Stanford University Medical Center
Seattle, WA N/A Seattle Children’s Hospital
St. Louis, MO Washington University Washington University
Toronto, Ontario, Canada N/A The Hospital for Sick Children

PCDF Accredited EM Diagnostic Centers

City Site
Rochester, MN Mayo Clinic Laboratories

Affiliate Centers

Affiliate Centers are very similar to PCDF Centers from a treatment standpoint, however, these institutions do not use all diagnostic tools specific to PCD, namely nasal nitric oxide (nNO) testing. Consequently, a comprehensive diagnostic workup cannot be conducted at these sites.

City Adult Site Pediatric Site
Columbia, SC N/A University of South Carolina
Halifax, Nova Scotia, Canada N/A IWK Health Centre, Dalhousie University
Los Angeles, CA N/A Children’s Hospital Los Angeles
Miami, FL N/A University of Miami
Ottawa, Ontario, Canada N/A Children’s Hospital of Eastern Ontario
Tampa, FL N/A University of South Florida
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