Rare Diseases Clinical Research Network
For information about the network and all studies: Rare Disease Network
For information about PCD studies: Genetic Diseases of Mucociliary Clearance Consortium
To express interest in studies: Join the Contact Registry

Participating Research Sites:

The University of North Carolina, Chapel Hill, NC
Contact: Susan Minnix, RN sminnix@med.unc.edu
Telephone #: 919-843-5308
Washington University, St. Louis, MO (St. Louis Children’s Hospital)
Contact: Jane Quante, RN quante_j@kids.wustl.edu
Telephone #: 314-454-2353
University of Colorado, Denver, CO (The Children’s Hospital Colorado
Contact: Shelley Mann, RN mann.shelley@tchden.org
Telephone #: 303-864-5416
University of Washington, Seattle, WA (Children’s Hospital & Regional Medical Center)
Contact: Sharon McNamara, MN Sharon.mcnamara@seattlechildrens.org
Telephone #: 206-987-3921 ext 1
University of Toronto, Canada (The Hospital for Sick Children)
Contact: Donna Wilkes, donna.wilkes@sickkids.ca
Telephone #: 416-813-4903
National Institutes of Health Bethesda, MD (NIAID)
Contact: Tanya Glaser, glasert@mail.nih.gov
Telephone #: 301-402-0865
Stanford University, Palo Alto, CA
Contact: Jacquelyn Zirbes, DNP, RN, CNP, jmzirbes@stanford.edu
Telephone #: 650-721-1132

 

PCD Foundation · 10137 Portland Avenue South · Minneapolis, MN 55420 · (612)386-1261
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