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Statistically, most (in fact nearly all) non-profit organizations receive 80% of their funding from private individuals. This can be a financial burden when the group being represented is very small. PCD affects relatively few people(approximately 19,000 in the U.S), yet the impact of research done in PCD could potentially benefit millions. The leadership of the PCD Foundation is committed to expanding the progress being made in PCD research. As a group comprised primarily of patients and parents, however, we are also aware of the limited resources of our core supporters. At the end of each year we would like to send out letters requesting support for the PCD Foundation and we are asking for your assistance to address the problem of our limited contact list. Specifically, we are asking for your help with getting support letters distributed to a wider audience by identifying 10-20 family members or friends you think might be willing to support the PCD Foundation with a tax-deductible donation. The links below are .pdf files of the 2006 annual letter and examples of personal notes that others have used with the annual letter to put a personal face on PCD. If you prefer, the PCD Foundation can send letters on your behalf if you provide the addresses. Near the beginning of each December we send out a copy of the current Annual Letter to everyone on our mailing list. If you are not currently not on the mailing list and you would like to be added please provide an updated mailing address. Thanks for all of your support of the PCD Foundation! Please contact the PCD Foundation with any questions about the Annual Letter campaign. Click here to open the Annual Letter 06 PDF. Click here to open another sample personal letter. |