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PCD Foundation |
Press Release |
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Keep Waving for PCD!
April
1, 2009, Phoenix Arizona--
Dear PCD Community,
Join PCD patients, families and friends on
Saturday, May 23 from 10-12 on the National
Mall in Washington, D.C. for the Keep
Waving! Event to raise awareness about PCD
and to raise money to benefit the PCD
Foundation.
Our goal is to have at least 100 people out
waving on May 23 and to raise at least $5000
for the PCD Foundation. For more
information about the event visit our
website at www.KeepWavingPCD.com. We need
your help to make this event a success.
There are many ways to make a difference.
Please consider participating in one or more
of the options below.
1. Be a "waver". Wavers will be at the
event waving to passers-by and handing out
PCD information to interested parties.
Before the event wavers will raise money for
the PCD Foundation by gathering sponsors.
You can register for the event at http://www.keepwavingpcd.com/Register.html.
2. Be a sponsor. Sponsor someone you know
while they are getting the word out for
PCD. Don't know any participants, you can
make a donation directly to the PCD
foundation at http://www.pcdfoundation.org/paypalcontribution.htm.
3. Pass the word on to family and friends
about the event. The more people we have
waving or sponsoring the more the PCD
community is benefited. We will have a
letter available on the Keep Waving PCD
website shortly. You can send this one or
personalize your own. We also have a Keep
Waving PCD group on Facebook. Ask your
friends to join the Facebook group.
4. Send a letter to your representatives in
Washington. Let them know about the event
and your concern about the funding of PCD
related research. We will have letters
available on the Keep Waving PCD website
soon.
5. Start your own Keep Waving! Event for
May 23 in your community. We would love to
have this be a national event next year.
6. If you live in the Washington, DC area
we could use help with event planning and
organizing. You can contact us at info@keepwavingpcd.com.
This event is being organized by Mary Rose
Kitlowski and her family, husband Ed
Kitlowski, parents Herb and Fran Goldstein
and sister and brother-in-law Rebekah and
George Giannakos. Both Mary and Rebekah
have PCD.
We hope to see you on May 23. Check the
Keep Waving PCD website for updates before
and after the event. Thank you for your
help.
The Kitlowski, Goldstein, and Giannakos
families
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Mary Rose Kitlowski
info@keepwavingpcd.com
www.KeepWavingPCD.com
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PCD Foundation
Michele Manion
623-215-2032
www.pcdfoundation.org
info@pcdfoundation.org
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