The PCD Foundation is a 501(c)(3) tax-exempt organization incorporated in the State of Minnesota. Our tax ID number is 20-0543474. The PCD Foundation is dedicated to increasing awareness of inherited ciliary disorders and to providing education and advocacy for affected individuals and their caregivers (please see our Mission Statement).

Interest in ciliary disorders has exploded in the international scientific community in the past several years. Recently, an international medical coalition dedicated to ciliary research and comprised of some of the top scientists and clinicians in the fields of pulmonology, ENT medicine, and cardiology published a book ("Cilia and Mucus: from Development to Respiratory Defense" M. Salathe, editor; Marcel Dekker, NY:2001) highlighting the importance of research in this area. Additionally, the prestigious CF and Pulmonary Research Center at the University North Carolina at Chapel Hill has dedicated resources to PCD research.

With the current level of interest, PCD patients and families who struggled for years to get the attention of the medical community recognized the opportunity to organize. The PCD Foundation was incorporated in the State of Minnesota in 2003, in Minneapolis. There is currently no other organized group in the United States serving this patient population. Our goal is to work closely with our counterparts in Canada, the United Kingdom, the Netherlands, and Germany.

The PCD Foundation has no paid employees and is funded by individual contributors.